And I’m more than bummed in some ways, but in other ways, I’m really OK with it. But, considering where I live, and my experiences with the medical folks here, it’s not that surprising that it’s been frustrating. It’s been 16 days since the nurse was here to meet with me for being on palliative. I was told that the chaplain and social worker would contact me, to set up a time to come and meet with me as well. I haven’t heard from anyone. When I called the nurse today, and asked to be taken off of the list, she asked if something had happened, and I basically said “Yeah- nothing!”. She told me people had been sick. Had I known that (COMMUNICATION), I would have understood. Why can’t someone just let a person know that they weren’t forgotten, and someone would be in touch as soon as they could. I can understand THAT. Even a 15 second e-mail… that would have been enough. I could have sent my well-wishes for the sick staff in a reply.
At the only meeting, I was basically told that there were much sicker patients than myself, and what did I want from palliative- which sounded like I didn’t belong. The next day on the phone, it didn’t seem to be an issue, so I didn’t bring it up. I know there are sicker people out there- I used to take care of them ! But this isn’t a competition ! When I mentioned knowing that they had sicker patients, she said that she didn’t mean it that way… OK. that’s fine. Good to know. *thumbs up*
Ended up OK- should I decide later on that I want to try palliative again. But for now, I’m on my own. Again… or is it still? I see the gallbladder surgeon on Friday (with a completely different healthcare system in town)… once the gallbladder is out, my days with doctors will be few and far between. Seems much safer like that, and if not safer, at least much less frustrating.