I haven’t written many blogs on the totality of what has gone on this year with the physical challenges, and trying numerous times to get some help. Today, I saw a surgeon who is compassionate, kind, and smart. He’s a military doc, so I’m guessing he’s had to do a LOT of really intense things- my gallbladder will likely be like popping a zit compared to putting a blown up soldier together again. But he made me feel like MY concerns were just as important as anybody else’s. Surgery is scheduled. It’s gonna happen.
How this has played out this year:
– late January, I started noticing right upper quadrant pain
– early February, getting worse- but now kidney function labs look pretty bad, so off of “good” reflux med, and the battle to stay hydrated got much worse.
– went to see surgeon, who said gallbladder needed to come out.
– went to GI appt. to see if I could get some help with fluids (i.e. a j-tube) to SAVE MY KIDNEY FUNCTION – not an easy way to get drunk (I don’t drink alcohol). That bitch of a nurse practitioner lit into me like I was the last living Nazi, and ordered tests for something I’d had tested, and was not the reason I was there- it all felt very punitive.
– FINALLY saw nephrologist (order got lost, but when I asked about it, I was told they’d call me… well, not if they don’t have the order.
– got news that kidney issues were related to dehydration from nausea (gallbladder). He gave me instructions on what to do with meds if I couldn’t keep enough fluid on board, and told me to keep putting the nasal tube into my stomach to get fluids in, however it had to happen.
– got OK to go back on good reflux med. Easier to get fluids in. Pretty much down to liquids and foods with no fat and little protein.
– broke ankle June 2
– 7 weeks of ankle splint, and still not back to normal.
– made appt to go see surgeon again, who (3 hours before the appt I’d waited weeks to get) wouldn’t see me until I got the UNNEEDED GI tests done- and wouldn’t even let me come to the appointment to talk to him AND show him a split in my abdominal muscles with a bulge that he might want to see before surgery. Would. Not. Even. Let. Me. Come. To. My. Appointment. (Thanks, Dr. Barteau- but really, THANK YOU- I found a doctor who is willing to include me as part of my own healthcare).
– got referral for palliative care to focus on symptoms, and quit trying to get blood from a medically deficient turnip. Nurse came out. Never heard from anybody else. Called to cancel their “services”, and was told that they’d had sick staff. Had I been COMMUNICATED with, I would have been accommodating. But nobody let me know why I’d met with palliative silence.
– to ER for second time with blinding left sided abdominal pain; name of surgeon given to me from THEIR medical group.
– my primary doc moved out of town, so started with a new PCP.
And that brought me to today. He couldn’t have been more kind. Surgery is scheduled, and the abdominal and pelvic CT w/w-o contrast was done, for a structural study that showed that the crap the GI folks were looking for was irrelevant. There are no structural issues making surgery risky. I understand the first surgeon wanting more information- but why want tests that were irrelevant to my gallbladder? And why was MY information about MY body ignored?
At least now, I can see an end in site to the abdominal pain. I’ll have a month to get ready (including a trip to the apple orchard). Maybe things will get better.