Well, No More Palliative…

And I’m more than bummed in some ways, but in other ways, I’m really OK with it.  But, considering where I live, and my experiences with the medical folks here, it’s not that surprising that it’s been frustrating.  It’s been 16 days since the nurse was here to meet with me for being on palliative.Continue reading “Well, No More Palliative…”

“You Look OK… “

Well, that’s great !  I’m glad I don’t look like I feel…  I’d have to worry about the dogs mistaking me for a fire  hydrant or other excretory depository. I’m not sure what THIS looks like:  – autonomic dysfunction: inconsistent regulation of blood pressure, heart rate, temperature – diabetes w/complications on insulin – degenerative jointContinue reading ““You Look OK… “”

Suicide Secrets- Time to Spill It… Secrecy Just Makes It Worse

With all of the suicides of notable people in the last couple of weeks, it has stirred up my own battles with depression and suicidal thoughts.  Not to worry- nothing ‘serious’ has gone on for years.  When the physical pain becomes more harsh than usual, or there are more health scares, I do think aboutContinue reading “Suicide Secrets- Time to Spill It… Secrecy Just Makes It Worse”

The Divisiveness is Breaking My Heart…

I’m just blowing off steam.  I can’t remember a time when I felt so hopeless about the vast majority of  humanity.   No matter who says what, there are legions of people who are at the ready to deliberately be cruel and completely disinterested in the “idea” that those who believe as they do areContinue reading “The Divisiveness is Breaking My Heart…”

Furnishing a House And Keeping My Parents Living There With Me Through Memories and Decorative Items

The past few weeks since dad died have been the days I’ve been most dreading for quite a while (starting in earnest last summer when he was too tired to go on a private yacht for a week.  He claimed seasickness- that didn’t fly as he’d been in the navy and had a sailboat withContinue reading “Furnishing a House And Keeping My Parents Living There With Me Through Memories and Decorative Items”

The Wacky World of Peripheral Neuropathy and Methadone

This hasn’t been a good weekend.  I slept most of January 1, 2016  (Hey, welcome new year !!), and the next two days haven’t been anything to cheer about (although I am alive, so that gets points).  This peripheral neuropathy is kicking my butt, and this morning it felt like a literal kick just toContinue reading “The Wacky World of Peripheral Neuropathy and Methadone”

Ramblings of 2015

Here it is… New Year’s Eve.  Getting ready for 2016.   It’s been a bumpy 2015, though I realize I still have a lot to be thankful for.  A lot has happened.  A few things are still being diagnosed.    There have been family changes.   And like always, I seem to manage… but it’sContinue reading “Ramblings of 2015”

Feeling My Body Fail

This has been a rough six months on top of a weird twenty years.  I’d learned to deal with diabetes, fibromyalgia, chronic pain, degenerative disc disease, nocturnal seizures (left temporal), degenerative joint disease, GERD, and the temporary effects of acute disorders like multiple pulmonary emboli (all three lobes of my right lung and right pulmonaryContinue reading “Feeling My Body Fail”

Why Handicapped Parking Spaces Matter… Even If I “Look” OK

To look at me, I probably don’t look ‘disabled’- or ‘that bad’.  I have all of my limbs, don’t use a cane because of vision issues, am not in a wheelchair all of the time (though I will have a wheelchair by the end of the month for longer distances), etc.  I don’t have contractedContinue reading “Why Handicapped Parking Spaces Matter… Even If I “Look” OK”