Because getting help for medical issues in RockTurd, IL is like pulling teeth from a parasite. Since January of this year (2018), I’ve had symptomatic gallstones. Now, they’re VERY symptomatic. During the workup for the gallstones, it was noted that my kidney and liver function tests were off. Got those figured out (not an issue for surgery), and then I broke my ankle. Was having some issues getting enough fluids in (and was putting a tube into my own nose for fluids), and wanted some help with that from the GI folks… but I never got to tell the NP why I was there. Gastroenterology Nurse Practitioner (of all of 5 years- barely even a nurse, and didn’t look like any actual time BEING a ‘real’ nurse) ordered tests irrelevant to why I was there- but went OFF on me (like needed medication adjusted) after I apologized TO HER for sounding abrupt. The tests felt punitive, and because it’s MY body, and I knew WHY I was there, and can’t do any of the follow-up (transportation and physical limitation issues), I won’t get the tests done. Period. But my reasons were seen as irrelevant. And the facility had nothing to say about how I was treated, and seems to think the angry NP’s shit doesn’t stink, because they still want tests I’d had done in 2016, with no change in THOSE symptoms redone. Nope. Not until you hear me out- but since I won’t ever go back there, won’t happen.
Well, then the OSF surgeon decides HE won’t do anything until I get the GI doc’s tests done- and CANCELS my appointment so I could show him what looked like an epigastric hernia. Didn’t want to hear from me at all. SO, I- the actual patient- was irrelevant to my own healthcare here in ROCKTURD, IL. THANKS so much, Dr. Barteau. Because you disregarded me in my own healthcare, I was able to find someone who DID listen, and is willing to talk to me- not AT me about another doctor’s orders for tests that were already done. But you wouldn’t let me tell you because YOU cancelled my appointment that I’d waited WEEKS to get.
I opted to go on Palliative care at this point- if I can’t get real help, then let’s focus on symptom management and stress relief- and then THEY don’t follow up when they KNEW that their staff were sick but didn’t let patients know of any changes in scheduling or when to expect contact. Really? No communication? So, again, not relevant to my own healthcare. Not considered at all… not worth an e-mail.
I got a referral to another surgeon with another medical group – and he is SO nice. He got things all set up, and surgery is scheduled. I had a ride there. I have someone to pick me up, and get me home, and stay with me (rent-a-nurse, as my family is dead or out of town, and the few friends have lives). Today, I decided I better be sure I can just be dropped off and picked up – and of COURSE NOT. I have to have someone who knows nothing about me, being paid to sit in the hospital doing nothing, so the hospital won’t CANCEL THE SURGERY. The “rules” aren’t for my benefit ! I’ll be laid out on the OR table. And if something is screwed up, I don’t have anybody alive who’d sue. So, I’ve got to have surgery alone (essentially), some stranger is more valuable than I am in my own care, and random rules don’t address individual situations. It would be much safer if I stayed overnight if they’re that concerned. But that would cost the hospital more money. Can’t have that.
So, I’m the only single, family-less person with friends who have lives in the entire city? I highly doubt it ! SO how many people die here each year because they simply get tired of fighting to be part of their own health care? I don’t see the value in pursuing any future medical care here. And I can’t move somewhere with good healthcare (again, physical limitations). So, I’m done. If something happens to mess up this surgery, I will die when my gallbladder gets so irritated it blows up (like appendices do). I’ll get peritonitis, and after a few horrible days, I’ll be dead- and that sounds SO much less stressful.