Time Buffers… It Does Not Heal All Wounds

Four years ago this morning, my dad called me at around 8:00 a.m.  He knew I generally slept until noon (up all night), so I knew it was something different and serious before I answered the phone.  He told me he couldn’t walk right, and asked if I could come to the house and seeContinue reading “Time Buffers… It Does Not Heal All Wounds”

Triggered ER Memories…

I got a canned e-mail from my dad’s medical provider, asking for one of those Press-Ganey surveys to be filled out.   I don’t do those.   They’re a colossal waste of time, and the results are used ‘against’ nurses in ways that are demeaning of the job. They’re a popularity contest for healthcare. NursesContinue reading “Triggered ER Memories…”

Another Season of Dysautonomia

It’s so frustrating to be at home watching a movie, and begin to feel the familiar feeling of one side of my face being on fire, my heart rate being erratic, and then the general ‘unwell’ feeling.  I’m at home !  I’m in charge of the thermostat (at 64 degrees).  I’m not moving around whenContinue reading “Another Season of Dysautonomia”

Dysautonomia and Disability- Social Security and Medicare

According to some, I’m nothing but a leech on society.  Here in the US, needing help is seen as being nothing more than a parasitic slug that simply doesn’t want to work. There is no distinction made between those who are lazy (a minority of the people on government assistance), and those who have workedContinue reading “Dysautonomia and Disability- Social Security and Medicare”

Emergency Room From Hell

There is a local emergency room that actually scares me.  I’m not the only one- whenever I mention its name to someone (even my new oncologist who works for the same organization) the reaction is usually “Oh, I know what you mean. I/my brother/mom/ dad/friend/ etc went there and they almost killed me/them.”  Their postedContinue reading “Emergency Room From Hell”

Could You Just Call And Check On Me In The Morning?

That’s really all I’d gone over to ask my neighbor.  Thank goodness she could tell something was wrong that couldn’t wait until morning.  I had been having a lot of low blood pressure episodes, but this felt very strange, and I was a bit afraid of going to bed and not have someone check toContinue reading “Could You Just Call And Check On Me In The Morning?”