The Mind on Fumes…

This is the last paragraph of my previous post: “Eating disorders are conniving and cruel. One ‘day’, things can seem OK, and the next there’s a drowning force of chaos and immobilization. Something moves from being fairly static with background noise to screaming and a desperate thrashing in dark, cold water to get to somethingContinue reading “The Mind on Fumes…”

Sorting Through The Symptoms…

 I’m whining.  *** Warning *** I’m not chipper and smiley right now… Read at your own risk 😉 This has been a weird few weeks.  Actually, things started to get worse with the dysautonomia during chemo for leukemia, which was fairly expected, but it’s getting worse.  Chemo messes with autonomic dysfunction, especially with diabetics, or thoseContinue reading “Sorting Through The Symptoms…”

Turning 50… and Already On Medicare For Six Years

I turned 50 years old.  I can’t figure out where the time went !  I certainly don’t feel ‘old’, and think that 50 is the new 30, even with the physical limitations I’ve had for years.  I’ve never been one to get all depressed or stressed by ‘big’ birthdays- 21, 30, 40…. but I’m notContinue reading “Turning 50… and Already On Medicare For Six Years”

What NOT To Say To Someone Who Is Disabled or Dealing With a Serious Illness

I think most people are trying to be helpful or supportive when they make comments to someone about their health and/or treatments, but there are some things that  those who have not experienced the situation should just stay quiet about.  Some things are just not helpful, and some are ‘enough’ to ruin a relationship.  TheseContinue reading “What NOT To Say To Someone Who Is Disabled or Dealing With a Serious Illness”

Crazy Few Months…

I’m tired.  The last few months have been fairly miserable.  I’ve been on Nutrisystem since the latter part of May of this year.  That was all going well with more than 30 pounds lost and kept off even through the crazy stuff.  Then, sometime in late July (I think) I started having daily headaches withContinue reading “Crazy Few Months…”

Chronic Pain in Its Various Forms…and Dysautonomia

While I’ve lost count of the exact number of days, this current ‘spell’ of severe headaches has gone on for at least 4-5 weeks, with maybe five or six days of no headaches at all in any given day.  Of course, it isn’t ‘just’ a headache.  I get the dreaded nausea along with it.  Continue reading “Chronic Pain in Its Various Forms…and Dysautonomia”

Just One of Those Months

For the past week and a half, I’ve had some moderately severe jaw pain on the same side where I broke a tooth, and had said tooth repaired, requiring me to open my mouth wide enough to swallow the Hindenburg.  It hurt.  But a few shots of novocaine, and I blew it off.  Until theContinue reading “Just One of Those Months”

In Memory of Madeline Spenrath, R.N.

I just found out on Thursday, April 25, 2013 that one of my favorite nursing supervisors had died.  I’d talked to her several times over the last few years when we were both going through various cancer diagnoses, but hadn’t talked to her in a while.  She had been through breast cancer, and thought sheContinue reading “In Memory of Madeline Spenrath, R.N.”

The Life of Cancer

When I was diagnosed with acute promyelocytic leukemia (APL) in late March 2010, I didn’t realize that cancer has a life of its own.  I expected to go through chemotherapy, have regular follow-up care, and move on. Done.  I’m already disabled, so I didn’t really think that cancer was going to be all that bad.Continue reading “The Life of Cancer”

Another Season of Dysautonomia

It’s so frustrating to be at home watching a movie, and begin to feel the familiar feeling of one side of my face being on fire, my heart rate being erratic, and then the general ‘unwell’ feeling.  I’m at home !  I’m in charge of the thermostat (at 64 degrees).  I’m not moving around whenContinue reading “Another Season of Dysautonomia”