“You Look OK… “

Well, that’s great !  I’m glad I don’t look like I feel…  I’d have to worry about the dogs mistaking me for a fire  hydrant or other excretory depository. I’m not sure what THIS looks like:  – autonomic dysfunction: inconsistent regulation of blood pressure, heart rate, temperature – diabetes w/complications on insulin – degenerative jointContinue reading ““You Look OK… “”

My Legs Are Retiring Part-Time … Wheelchair Will Be Here Next Week

This week, I went to  my doctor’s office so she could do the ‘face to face’ appointment required to order a wheelchair for me.   Normally I detest MD appointments (leaving home is painful- the docs are OK ), but I actually respect that Medicare requires this so that they aren’t paying for scam wheelchairs.Continue reading “My Legs Are Retiring Part-Time … Wheelchair Will Be Here Next Week”

Why Handicapped Parking Spaces Matter… Even If I “Look” OK

To look at me, I probably don’t look ‘disabled’- or ‘that bad’.  I have all of my limbs, don’t use a cane because of vision issues, am not in a wheelchair all of the time (though I will have a wheelchair by the end of the month for longer distances), etc.  I don’t have contractedContinue reading “Why Handicapped Parking Spaces Matter… Even If I “Look” OK”

Frustration and Unpredictability of Dysautonomia

I’m supposed to be over at my dad’s  friend’s home, eating tacos with them.  I’d looked forward to it since getting the invitation this morning.  I took a shower (not a simple task when temperature changes are risky) and got my extra ice vest inserts packed into the insulated bag, and the ‘full’ ice vestContinue reading “Frustration and Unpredictability of Dysautonomia”