Former Co-Workers When I Worked Pediatrics

I was stumbling around on Facebook, and  found three of the R.N.s I worked with when I worked pediatrics, and sent ‘just saying hi’ messages.  I’m not sure they’ll see them, but I hope they do.  When I worked there, the dysautonomia had started getting much worse, and they were stuck with me some nights when I was having heart rate and blood pressure issues.   More than once, I was hauled down to the E.R.  Not good.  I was more of a liability with my inconsistent ability to stay vertical.  And I’m not sure anybody really understood what was going on.   I know I was stunned at how bad things were getting… and it scared me.  But I still thought I could work if I found something else.

Anyway, I have respect for them, and am glad I had the chance to work on a pediatric floor.  I’d taken care of kids on many other types of floors I worked  (neuro, head injury rehab, general med-surg) for years, but not a ‘real’ pediatric floor.   I greatly value the experience I got there.   I’m going to post this with a ‘public’ tag, hoping they see this if they get the messages.

When the dysautonomia first kicked in after I’d moved back from Texas, I wasn’t sure what to expect, so didn’t panic at first. I’d always been able to find some medication that helped.  I had to do a 3 week heart monitor that showed PVCs.  That was treated with medication, and it did help to some degree.  I could still feel them, but not as often.  But, I was still  able to work more than not.  I was starting to feel uneasy around the tinier babies… I would do all care and assessments without moving the baby off of the bed.  I’d ‘cradle’ them in my arms, and do everything that needed doing, but I was afraid to move them away from the safety of the cribs.

The summer months were hard on that floor because of the decreased census (kids not in school giving each other ‘bugs’). Being single, I didn’t have a spouse to help make up the difference in pay I was losing when hours were cut (I lost a month’s hours over the summer).  That was a problem.  I couldn’t work overtime when I was doing all I could to work the hours I was assigned.  Everybody got hours cut- and it was fair as far as that went, but I needed full-time work year round. The nurse manager contacted an adult med-surg manager who said she’d plug me into their schedule, but she never answered my  phone calls.  And I was getting scared.  I needed to work somewhere where  I wasn’t so anxious about the dysautonomia.  I didn’t trust my own body…but I wasn’t ready to give up working. Being a nurse has been my identity for a long time.  It was like that part of me was starting to die. But I didn’t want to give up.

I made the decision to work at a nursing home.  I’d worked in several before.  I wouldn’t have the fear of dropping a small baby/child when I’d get dizzy or feel the PVCs, and if I had to move someone, there was always a CNA around somewhere at the nursing home to do it together.  It was more team oriented- though any one of the pediatric nurses would help when asked.  I’d be pushing a medication cart around, and if needed, I could stop for a minute, bend over, and try to clear my head when the dysautonomia kicked in.   While I really was thankful for the chance to work pediatrics (the reason I went to nursing school 18 years earlier), it wasn’t a good thing in many ways anymore.   And, it was really hard to leave.  I really liked the vast majority of people I worked with.  They gave good care to the patients, which I respected.  Most of the night shift nurses were ‘older’ (not 20-somethings), and I enjoyed working with nurses closer to my age.  But I had to leave for many reasons.

I felt badly about the short notice they’d get when I was feeling the pre-syncopal symptoms.  If I was taken to the E.R. in the middle of the shift, someone (or a couple of them) would have to take care of my patients.  That wasn’t fair to them.   There were huge issues with the temperature of the break room (or any designated place I could go cool down). My heat intolerance was bad, but  at that time, I could still go into patient rooms and do what I needed to do, even if it was quite warm.  The babies’ rooms were especially warm, which they needed;  I understood that, and was  able to manage.  But it was nearly impossible to find somewhere that was cool enough for me to chart between assessments or meds (being in the rooms), see my lights going off, and do better getting through the shift- mostly because of one nurse who was considered the nurse manager’s ‘pet’.  That one nurse in particular was very nasty about the thermostat.   I didn’t care if I  was in the main area- I just NEEDED somewhere that wasn’t as hot as most of them liked it (I’ve deteriorated a lot since then, and can’t leave home without cooling vests, and my thermostat is never above 68- generally cooler, and often on when the outside temp is below 40 degrees). I leave home about once or twice a month, always with the cooling vests.   I could have pursued it with the ADA (Americans with Disabilities Act), but I’m not much into ‘forcing’ someone to do the right thing.   If they’re that nasty, I’m not interested in working with them.  There were many really great nurses to work with there, but if I couldn’t stay conscious, I was no good to them or the patients.

Since then, I worked about 8 months at the nursing home before I was essentially forced to go on disability.   I was passing out ‘hard’, and hauled off by ambulance at least 10 times in the last 2 months I was there. I don’t remember any of the ambulance trips.  By then,  I had an office job doing care plans.  I tried to go back  7 months later, but it didn’t work.  My body was crashing, and the pain from the repetitive motion and shoving those 200 pound medcarts around was triggering more autonomic stuff- whether at work or at home.  Nobody there would acknowledge I existed after I had to leave.  One went out of her way to avoid me at the grocery store.  I’d gotten sick- I wasn’t some sort of criminal !!

Since being on disability, I’ve deteriorated even more, and had some more challenges come up.  I’ve had leukemia (acute myelocytic, subtype M-3, or APL) with 19 months of near daily chemo of some sort- that blew me up like a toad (face/chin is still not right after a nasty cellulitis and ear infection during the worst of the leukemia), I lost my hair twice, and my eyebrows never did come back in right. But a local news anchor died within 2 days of diagnosis from the same thing, so I’m fortunate.  I’ve got degenerative disc disease in most of my spine, so chronic pain.  I had a knee replacement.  I had multiple pulmonary emboli, and spent a lot of time hospitalized getting that straightened out, or for complications from them or the warfarin. I had testing to see if part of my brain could be removed- come to find out I need all of it :p   Chronic pain and headaches are just daily life.   Chemo makes autonomic stuff worse; my legs are atrophying, so I am ‘working’ my thighs as much as I can to maintain the strength there.

But I’m fortunate.  I’ve had great experiences as an R.N.   I miss it daily.  I’ve been of some use to some family and friends when they’ve been going through their own medical disasters.  But, I had really hoped that I’d work on that pediatric floor for a long time.  It was my dream job when I was in nursing school.   I really enjoyed most of the people I worked with.  I respected them and the care they gave those kids.  I liked the patients (the abuse cases were hard to handle emotionally; they angered me), and learned a lot.

I’m also still able to live on my own.  There are times when I wonder how long that will last, but I’m doing what I can to make sure I can live here in my own space for as many years as possible.   I have a ‘new’ dog; she’s 18 months old now, and nuts, but a lot of company.   I got her when she was 9 weeks old.   My dad is still healthy and a big part of my life. I have two friends from when I grew up here. One has helped me a lot with straightening out my apartment after being packed 4 times to return to Texas… every time I packed, something else would go on medically; I’m no longer able to travel very far.  The TSA has issues with my cooling vests (they turn into liquid), and I can’t be ‘contained’ in something with no room to get up and move around. But,  I have adjusted how I do things (order many items online, get Schwan’s food delivered, shop in the middle of the night when it’s cooler, and there are fewer people getting huffy because I don’t move as fast as they do, etc.).   There are ways to get most things done.

SO, if any of those nurses I worked with see this, thank you for being part of the good things I remember when  I worked with you.   I may have only been there for eight months, but you left good impressions, and it was long enough to respect you.  I wish you all well.   I didn’t know how to handle what had started getting bad, and I’m SO  sorry for the inconvenience I was for you, as well as the times I sort of spooked some of the nurses I worked with when I’d hit the floor.   But mostly, thanks for the good parts 🙂

Dysautonomia episode w/ chest blotching, severe flushing, lightheadedness, and other symptoms that come and go with various intensities.

Dysautonomia episode w/ chest blotching, severe flushing, lightheadedness, and other symptoms that come and go with various intensities.

Blowing Off Steam About Love and Respect

I need to blow off some steam. Some stuff has been bugging me for a while.  And in some ways, even writing this is making me guilty of what I am so deeply saddened and frustrated by.  For that, I ask God to search my heart for my core beliefs and motives,  that can be so hard to describe in words.  I hope I make sense with this and come from a place that pleases Him.

I’m a fairly conservative Christian,  though I don’t consider myself to be an ‘extremist’ – I don’t believe extremism is beneficial for anything. (Matthew 6:1…”Be careful not to do your ‘acts of righteousness’ before men, to be seen by them. If you do, you will have no reward from your Father in Heaven.”… ‘Appearances’, and not compassion, scream hypocrisy, and push people away from us- and the chance to share Jesus….Matthew 5:22 talks about anger, and the emotions that destroy relationships and spirituality – we’re to be in control of our actions, but our thoughts can also degrade our relationships spiritually… Life Application Bible notes).

It’s one thing to have a firm belief in God and His Word, and quite another to use it as a weapon against those who are either struggling, or have different beliefs- or are not Believers at all.   Nothing about God is  a weapon for destruction.  We’re instructed that our relationship with God is to be used for GOOD, not divisiveness.  Divisiveness is a tool of Satan.  James 3:5 “Likewise, consider the tongue as a small part of the body, but it makes great boasts. Consider what a great forest is set on fire by a small spark. The tongue is also a fire, a world of evil among the parts of the body.  It corrupts the whole person, sets the whole course of his life on fire, and is itself set on fire by hell.”  And it can be incredibly difficult to figure out how to love the sinner and hate the sin, and do it from a place of love and compassion for the person, without being judgmental.

Every week there is something else in the media (not from God) that turns on the “judgement switch” of a lot of Christians… and that’s not our job as Christians. I see it in people I know,  people I don’t know in articles and interviews, and I see it in myself at times, and must stop and ask God to help me deal with the situation in a way that pleases Him. I’m not always very good at that.  Every time ‘WE’ judge ‘the other side’, we do *exactly* what we accuse ‘them’ of doing.  I’m so tired of it!  I strongly believe in having a solid core belief system, and mine happens to be that of a conservative Christian. My goal from my heart is that  I become stronger with the  characteristics of a Biblical Christian (not humanly manufactured judgement spewers).   Living the Fruit of the Spirit is my daily goal (and I fail regularly)  😦  … Galatians 5:22… “But the fruit of the Spirit is love, joy, peace, patience, kindness, goodness, faithfulness, gentleness, and self-control. Against such things there is no law.”  When I disagree with someone, or feel I’m not being heard or treated fairly, those are the responses I am to have.  And it ain’t easy!

I have enough of my own character defects to work on to have ANY right to call out someone else.  Even if something is in the Bible as sin (and we are ALL sinners), I can only live and grow my own relationship with Jesus.  Even Jesus didn’t come to point fingers and judge- He came to save us; judgement will come at its due time, only known by God.   If Christians are so busy worrying about the actions/thoughts/beliefs of someone else, who is left to love them to the Lord?  Matthew 7 is a great chapter on judgement and forgiveness.

We have all sinned (Romans 3:23).  There is no hierarchy of sin.    I believe we  ALL need Jesus- every single day for our OWN spiritual lives. I understand that not everybody believes that- and God gave us free will to believe or not, so who am I to demand more than God? He wants genuine believers- not robotic, loveless stalkers!   We are commanded to go into the world and spread the word of God… How can we do that if we’re so busy condemning others?  Romans 12:18… “If it is possible, as far as it depends on you, live at peace with everyone.”   Salvation, and a relationship with God is a choice- we can’t earn it, we can’t lose it… but we must sincerely desire and choose it.  And I can only choose for myself.

Does that mean we condone everything? Of course not !  But we aren’t responsible for the actions and beliefs of others- and if we’re so busy being pious and judgmental, who is left to share the Gospel?  We are known by our actions first.  And there are many Christians who send non-believers running for the hills from the hypocrisy and absolute intolerance of various groups of people, or those who even believe differently. Some send ME running for the ‘hills’, and we’re supposed to believe the same thing !
There is not one person on this planet who can truly know what is in the heart of someone else- their struggles, pain, frustrations, BELIEFS, etc.  Christians are generally taught to appear like everything is wonderful- which is VERY hard to do 24/7.  And it’s disingenuous.  God gave us emotions.  But we do have to be careful about not directing them AT others, and instead using them to encourage and uplift others.   ‘Loathing’ is not from God.  Constant mockery, negative comments, and complaining are in direct contrast to what we are told to do in Philippians 2: 14-16… “Do everything without complaining or arguing, so that you may become blameless and pure, children of God , without fault in a crooked and depraved generation, in which you shine like stars in the universe as you hold out the Word of Life- in order that I may boast on the day of Christ that I did not run or labor for nothing.”  That’s hard !  But it lets me know that getting involved in negative ‘conversations’ isn’t anything I’m doing to praise God.  It’s purely self-serving when it’s not done out of love, and to offer something positive and encouraging.
I believe that there are a lot of Christians who truly love the Lord, and are still struggling with various issues.  When I worked drug and alcohol rehab, we saw a LOT of Christians… and had a special sub-group of recovery options for them in addition to the traditional  12-step treatment (which is completely spiritually based, and strongly reflective of the Sermon on The Mount).  Christians are not immune from continuing to (or starting another)  sin; for some it’s easier than other to ‘reform’ and/or recover. Some have condemned themselves much more than anybody else could- and are afraid God couldn’t possibly want anything to do with them. (So let’s throw some disdain their way, eh?) And some have lived their entire lives believing that they are guilty of something that was done TO them.
I’m so glad that the  God I know is more loving and forgiving than many of my fellow Christians- known personally or not. And HE knows MY heart!  He has access to the secret corners of my being, and loves me anyway!     Other humans only know what they assume- and that is dangerous ground for basing a relationship (or opinion) with anybody.   John 8: 2-11 is an outstanding example of how Jesus dealt with a woman accused of sexual sins.  He came from a place of love.
I spent many years with severe eating disorders –  clear abuse of the body God gave me, and where the Bible says the Holy Spirit dwells in Christians.  I was living in a state of daily sin by focusing on the flesh– and yet I still loved God deeply, and dealt with the shame of not living fully for Him when I was focused on something so destructive, and felt so stuck.  It’s painful to see Christians assume that because someone is ‘pro’ this or that, or in some sort of addiction (food, drugs, alcohol, etc.)  that they aren’t Believers.  “Let he who is without sin cast the first stone”… remember that one?   I’ve met a lot of Christian addicts (recovering, and  just going through detox)… some of the most solid Christians I’ve ever met.   Being a Christian never removes the fact that we’re still human.  We fail. We get up. We move on. And sometimes (a lot of times) we fail again, with the assurance of a loving God catching us in His arms.
Some (a lot of ? ) folks do appear to be clearly anti-Christian.  There’s someone on the news, other TV shows, radio, Facebook, Twitter, etc.  pretty much daily that come  only to verbally mock and shun Christians.  (one program last night had me fairly heated !). God has that covered !  We’ve been told about those who persecute Christians- it’s been going on for a couple of thousands of years now !   And it’s not our fight.  God will take care of those who harass His Children in due time.  I find comfort in that- I don’t have to waste time being angry or even hateful !  I can try and find things to be thankful for.  We’re instructed to be thankful in ALL things.  We’re instructed to have a very specific mindset about our ‘enemies’. ****  It is so much more freeing to not be worn down by things that I have no control over, that will be dealt with by God in HIS timing, and to look at the wonderful things I’ve been blessed with- however great or small… they are more uplifting than the negative people and situations :
****1 Peter 3:9…” Do not repay evil with evil, or insult with insult, but with blessing, because to this you were called so that you may inherit a blessing.”  
Matthew 5:44… “But I command you all, love your enemies and pray for your persecutors.”
Romans 12:14… “Invoke blessings on your persecutors, blessings- not curses.”
1 Peter 3:15…”But in your hearts, set apart Christ as Lord. Always be prepared to give an answer to everyone who asks you to give the reason for the hope that you have. But do this with gentleness and respect, keeping a clear conscience, so that those who speak maliciously against your good behavior in Christ may be ashamed of their slander.  It is better, if it is God’s will, to suffer for doing good than for evil.”    Hmm… ‘in your hearts’ (don’t need a billboard).  Gentleness and respect…. (wow- don’t see much of that).  Is it good or evil to single out assorted ‘hot topics’ and make them a thermometer of morality and gauge of someone else’s heart?  Or would it be more in keeping with Jesus, being the definition of love, to reach out and show compassion?  I don’t have to agree with anybody to  be kind to them.
I can anticipate some who read this getting upset that I’m not focusing on pointing out  specific ‘hot topic’  sins of others  that they feel are clearly stated in the Bible.  I’m really not interested in pointing out someone else’s sin nearly as much as I am showing them the love that Jesus came to show us; the Holy Spirit  will convict someone of sin- I’m not that powerful, so why not show love and compassion?  I’m not always good at it- but that is my goal.   When anything comes across as hate, it will drive someone away who God loves, and wants a relationship with.  That’s not being obedient.  I don’t have to change my beliefs to show someone else what I believe- and I don’t have to do it with condescension or spite.  Neither of those are from God.  I don’t have to jump on every bandwagon that comes along to ‘prove a point’.  I know what I believe… I don’t have to repeatedly and frequently drive the point into the skulls of anyone I encounter.  My friends know what I believe, and IF someone asks me, I will aim for the gentle and respectful explanation.  🙂
Sometimes, there are people who will only know one or two ‘known’ Christians… do you want to show someone the love of God, or tear them down by talking about specific sins?  We are all sinners, and Jesus came for all of us.  There are no prerequisites for loving Jesus.  He takes us as we are.  All of us.  As. We. Are.  The miracles of being new creations happens after someone discovers Jesus, and the ultimate meaning of love.
So, what is my hope that I show people?  It’s very clear…  🙂  And it’s an ongoing process.  So, I’m really not at liberty to judge someone else.  I’ve got my own work to do.
I Corinthians 13:4-8a….”Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It is not rude, it is not self-seeking, it is not easily angered, it keeps no records of wrongs. Love does not delight in evil, but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres. Love never fails.
I wish everyone a very Merry Christmas, and New Year filled with peace, compassion, and joy of knowing that God supplies all of our needs.

 

 

 

My Friend Gretchen

I moved back to my hometown in late 2002, and left my friends of 17 years back in Texas. I got a nursing (RN) job fairly quickly, but then the dysautonomia and seizures made it impossible for me to continue working, even after finding a ‘desk job’ as an RN. I passed out too often to be employable. SO, I was at home. People here don’t keep in touch with ‘throw away’ co-workers, so I didn’t really have friends. There was nobody to list on any ‘who to call’ paperwork, except for my dad. So I was at home pretty much all the time. I had some really nice neighbors. ‘L’ lived directly across the parking lot from me, and Gretchen, and her daughther ‘E’ lived upstairs from ‘L’.  I became friends with ‘L’ first- mostly since I saw her the most, though I saw Gretchen periodically, and ‘E’ when she was home from college.  ‘L’ eventually moved to a condo, and Gretchen moved ‘L”s apartment downstairs.

For a while, we saw each other in the parking lot, and also got used to each other’s routines. She knew when my vertical blinds had been closed too much, and I knew when she was grading papers at her dining room table. I later found out that when she thought I hadn’t been seen for ‘too long’ she’d call the apartment complex office to see if they’d heard anything- to be sure I was OK.  I spent a lot of time in the hospital for sometimes weeks at a time- so she’d check up on me. She’d see my dad checking in on my dog (Mandy), and since they knew someone in common, they’d chat.  Gretchen taught 4th grade for many years in a neighboring school district.  Eventually, we talked more. I’d see when her grandson (first grandchild) was brought to see her when he was tiny, and other times when her daughters (‘A’ – the baby’s mom, and ‘E’, the college student) visited.  Being on disability, and home the vast majority of the time, afforded me a lot of time to see who was coming and going.  We always talked when we saw each other, but it was more ‘parking lot neighbors’ kind of stuff.

I forget which one of us had a knee replacement first, but that gave us something in common. We’d commiserate over the rehab process.  Then Gretchen started having other health issues, and also had to go on disability.  I understood what it was like to have a profession taken awayIt’s not the same as retiring. It’s being robbed of something that is truly loved, and having no way to get it back. It hurts.  I ‘got it’.  We started talking more, and becoming actual friends. If she needed me to go get her car when she’d have to go to the hospital, I was glad to help out.   I don’t consider a friend someone who is paid to be in the same place at the same time (that’s a co-worker- and friendly co-workers are incredibly important, and can become friends). Someone who is paid to provide a service isn’t a friend- though they can be friendly. To me, a friend is someone who shares common interests and is loyal and fun to be around.  Gretchen was a friend.

She decided to move closer to ‘A’ and her son-in-law  in another state, which was really hard, but I was also happy for her. She had a grandson she adored, and a granddaughter on the way. She was so excited.  ‘E’ was doing well in school, and she was so proud of her.  And we still had my unlimited phone plan (I had a landline; she had her cell phone), so keeping in touch wasn’t a problem. It would be different, though.  I could call Gretchen when she lived across the parking lot and ask if she’d eaten yet… her reply was “I’ll get the car.”  And off we’d go in literally less than five minutes.  She’d show me her latest treasures from the Target discount racks, and be so excited. I think she went to Target at least 3-4 times a week; sometimes I’d tag along.  I haven’t been able to go there since she’s been gone…  She called me when she couldn’t get her quilts in a ‘Space Bag’, and we’d fold and shove and vacuum until the thing worked.

Gretchen had had another knee replacement and began having complications. She had fallen, and also had some tendons fall apart and an infection.  She had several more surgeries, and we’d talk daily about something, either in the hospital or in one of the rehab centers (she knew I’d worked in rehab and nursing homes as an RN, so I knew what was acceptable care), as well as during TV shows we both liked.  It was a rough time for her.  She did come back to this town for a month not long after her granddaughter was born, and ‘A’ and her family had taken a trip.  We did a lot of thrift store shopping for the grandkids (we packed the Jeep absolutely full), and had fun just goofing off together.  She had an infection brewing in her leg, and we’d gone to Walgreens…both of us had forgotten our glasses. Fortunately, she could see close up, and I could see distances, so between the two of us, we got some panty liners to put on her leg to sop up the drainage from her leg. It was a bit unconventional, but it worked.  We just laughed about our combined visual deficiencies, and how we made it work 🙂 We always found something to laugh about !

After she had the last surgery, she was in a long-leg cast, but Gretchen wasn’t one to sit around.  She wanted to be mobile ASAP, and didn’t let a wheelchair or cast keep her from moving herself from chair to bed, or wherever she needed to go (like in front of her computer to order stuff for the grandkids and her daughters).   She’d been through a lot after the last knee replacement, and it seemed like things were going well.  She was going to be by herself one weekend morning, and she’d asked me to call her just to see if she was OK- and I had no problem with that; we talked all the time anyway (or she’d e-mail me; I just found a few of her old e-mails that had been saved the other day… kinda freaked me out). 

I called as planned, and got no answer. I knew something was going on- ‘A’s home phone had multiple lines; even if someone was on one line, another would be open. And, they weren’t supposed to be there. Gretchen was supposed to be home alone. Something was wrong.  I tried several more times, and was trying to figure out what to do if I couldn’t get ahold of her.  And then ‘A’ called me. I knew before she told me.  Gretchen had died.  They’d found her on the floor that morning.  Whatever happened had been fast.  She had some other medical issues, so there were very plausible reasons for a sudden death… and it was sudden and unexpected.  It was later found that she’d been on the computer as late as 1:00 a.m. that morning; she was found before 8:00 a.m., or so.  I was stunned.  My friend was gone. My friend’s daughters, son-in-law (who she also adored), and grandkids had lost an amazing part of their family.

Since then,  twin granddaughters were born less than 2 years after Gretchen died. She would have been so excited and  having so much  fun with all four of those beautiful kids.  I keep in touch with ‘A’, and her husband, and ‘E’, which has been great.  I see the updated photos on FaceBook.  I know Gretchen would be so proud of all of them.  Her heart was so big, and she loved them all so much.

I don’t think Gretchen ever met a stranger, she was just one of those people who was kind and really cared about people. She got a bunch of kids’ hats, mittens, and socks when we’d go thrift store shopping for kids in her class who didn’t have much.  She thought about what other people were going through when she had a lot of her own stuff going on. But her family made her light up more than anything.  I was so angry that she was missing out on them… on those incredible grandkids growing up, on ‘E”s life after college and grad school (and that she’s working for Target !!), the twins (that she never knew about), and so many of her friends and her former students.

But I got to know Gretchen for a few years.  Very few people have been in my life for such a relatively short period of time and left such an impression.  She was a real friend. I’m lucky to have known her. ❤