Why…?

For quite a while, I’ve felt like I really don’t have a group of people that I can really call a core  ‘community’.   Yes, I’m a Christian, but I am tolerant of others’ choices for their own lives, even if I don’t understand them, or in some situations have any interest in hearing aboutContinue reading “Why…?”

Dysautonomia Awareness Month…. I’m Very ‘Aware’ All Year, Every Year

OK.  October is Dysautonomia Awareness Month… With ‘Breast Cancer Awareness Month’ at the same time, nobody will care about dysautonomia.  My guess is that men are more than likely behind the sanctity of boobs, so along with being a rare disorder that people really are NOT aware of, there is the whole ta ta thingContinue reading “Dysautonomia Awareness Month…. I’m Very ‘Aware’ All Year, Every Year”

Turning 50… and Already On Medicare For Six Years

I turned 50 years old.  I can’t figure out where the time went !  I certainly don’t feel ‘old’, and think that 50 is the new 30, even with the physical limitations I’ve had for years.  I’ve never been one to get all depressed or stressed by ‘big’ birthdays- 21, 30, 40…. but I’m notContinue reading “Turning 50… and Already On Medicare For Six Years”

What NOT To Say To Someone Who Is Disabled or Dealing With a Serious Illness

I think most people are trying to be helpful or supportive when they make comments to someone about their health and/or treatments, but there are some things that  those who have not experienced the situation should just stay quiet about.  Some things are just not helpful, and some are ‘enough’ to ruin a relationship.  TheseContinue reading “What NOT To Say To Someone Who Is Disabled or Dealing With a Serious Illness”

Dysautonomia and Disability- Social Security and Medicare

According to some, I’m nothing but a leech on society.  Here in the US, needing help is seen as being nothing more than a parasitic slug that simply doesn’t want to work. There is no distinction made between those who are lazy (a minority of the people on government assistance), and those who have workedContinue reading “Dysautonomia and Disability- Social Security and Medicare”