OK, for those who know me, the ‘getting weird’ part might be nothing newsworthy. I go through times when I’m skating along fairly well with the medical stuff, and then something happens, which freaks me out because of the cancer history and neurological issues, and I get in a funk. I’ve been having trouble swallowing consistently, and have finally asked for a referral to the ENT (should hear about an appointment time soon). Raw carrots and medications get stuck regularly, and things like rice or dry chicken are sometimes downright scary. I guess I’ll find out about that when I finally get to the appointment.
The continued atrophying of my thigh muscles is still an issue. I do what I can to stretch, walk around the apartment, take out the trash, and do my own grocery shopping (very painful). The days after my monthly grocery store trip are generally miserable- but I’m also not good at taking the pain meds. I try to make them last, and since hydrocodone is now a Schedule II (and requires a paper prescription for each refill- no faxing from the pharmacy), it’s inconvenient and painful to go get them. But, I’m going to have to give up and just go get them. My doc can give me two refills per trip- just all dated for different months – so have to be filled at spaced intervals. And, I have to take them. I’m meticulous with other meds- but the pain meds hit me the wrong way- like I just need to buck up and get a grip. That doesn’t work well when I’m lightheaded from the pain.
My blood pressure is also shifting (going low), so that is a problem. I’m adjusting the meds for that. I’m requiring less insulin, which is good- but sort of trial and error as I readjust the dose. None of these things are any big deal… but sometimes the pile-up of several things is exhausting. I’ve also lost a little weight (about 25 pounds from highest chemo weight; 14 since March 1st )- so that’s good, but still trying to shed more. But I bailed out of Nutrisystem. It was getting too focused on numbers, and my history doesn’t bode well with compulsive number calculations. I get back into thinking about how much easier it is to lose weight when I’m NOT following some relatively rigid rules. I think it’s a good program, but NOT for someone with a history of eating disorders. I could feel those old patterns swinging from the rafters of my brain.
Then I look at the world at large, and the horrible things people do to each other. I’m not going to go into specifics, since I’ll just get upset. When I see tragedy on TV, I just want to reach through the screen and wrap my arms around those who are suffering. SO, I pick and choose what I watch anymore. Tonight I had the weather on, as we were having severe storms again, and more tornadoes hit the area. We had an EF-4 come through on April 9th that really tore up one whole town, and heavily damaged another subdivision. Tonight, a 6,200 ‘lot’ camping ground was hit. They’re still looking for people as I write this. The other towns hit in April haven’t got their lives back together, and now some folks 10-12 miles away are looking for their lives, that are scattered around the neighborhood. As of now, they know of 5 who are injured, and trapped by flood waters. But they haven’t accounted for everyone yet.
The shooting in South Carolina was an abhorrent act- and the congregation of that church are amazing examples of how NOT to hate back. Truly inspirational people, and all before a week has gone by since nine of their friends and family were mowed down.
My brain is tired. My limited ability to DO anything to help is so frustrating (I can’t be outside in this weather because of the heat intolerance). And yet, I have SO MUCH to be thankful for- and I do realize that. I’m very blessed in so many ways. Today, I got something I’d wanted to try for a while – Mexican street tacos- they were outstanding, and a real treat since I don’t leave home more than 2-3 times a month for groceries and MD appointments. This did make me happy today 🙂 They were so good.
Sometimes, I just need to blow off steam 🙂