This has been a year I hope to forget. I’ve had endless appointments and testing done for GI issues (starting with a large gallstone that nobody would remove without repeating tests that had been done two years prior with no change in those symptoms), kidney function abnormalities, etc. I’m done. They win. Even though the new primary care doc (different health system) is a far cry (in a good way) from the “healthcare providers” (use term very, very loosely) I’ve seen this year, I am no longer interested in testing, treatment, or being BOTHERED by sitting in waiting rooms and arranging my limited life around waiting rooms. My newish primary doc is a decent sort. But he wanted me to see a GI doc before referring me to a surgeon. Well, I don’t want a surgeon now. I don’t want ANYTHING from medical people in this town. I can use Urgent Care for simple stuff. That (and any trip away from home) requires getting in and out of the car twice for one appointment/stop. THAT causes a lot of pain that generally results in at least a day or two in bed to help the muscle and joint/disc pain.
Sent to current doc after messaging about still seeing GI doc AGAIN, when symptoms have improved “enough”:
“I’m SO, so sorry to be a pain in the ass. Really, I am. I just don’t want to be bothered with medical anything other than the bare minimum to stay alive within the ‘cage’ of my house. Appointments are not worth it to me. I’m buying my own Blood Sugar strips/CPAP junk. My labs were better. That should buy time. Plus, appointments are painful with the DJD and DDD. A single there/back = 1-2 days in bed.
I’m just DONE with folks meaning well, but not hearing that I DON’T CARE anymore about finding out about any new problems. I won’t go to the ER. I don’t care about the gallstone. I don’t care about anything but basic maintenance. I’m trying to wean off of all meds I can. I’d like to spend time not thinking about appts, tests, etc. The nausea is better. I’ve had mild nausea intermittently for years, and that is livable. Belching yesterday’s lunch at breakfast the next day tells me that my gastric motility is dull- don’t need a test for that, and don’t want meds for it. The stomach pain is much better since NOT having to deal with the other health care systems.
If I’m not interested, why should anybody else put more energy into something that doesn’t effect them?
My goals: 1) not wasting what little is left of quality of life in one waiting room after another. Nobody will fix the things that effect mobility (clot history)-and my shoulders are not strong enough for rehab anyway, and the rest of it is just not fixable. After the hell with the other healthcare systems in town not giving a damn about what I want out of things, I’m just done looking for anything else that would need anything done about it. If that means palliative now, so be it. I can’t leave the house in the late spring/summer/early fall during the daylight (heat) anymore. If I have to have anything done, it means hiring “help” and I don’t “do” babysitters. And 2), not contacting your office unless there’s something that can be treated VERY, VERY simply (UTI, URI).
Had I seen you first this year, I doubt I’d be where I am now, but my PCP of 11 years was still here- and she was the ONLY reason I stayed with freaky OSF for so long. I don’t trust much right now (nothing related to you). I hope that changes. I’ve had 2 GB ultrasounds, the endoscopy, and abd/pelvic CT. If there’s something going on that isn’t on any of those, I won’t want treatment anyway. SO why waste anybody’s time? I’m done on the patient rodent wheel. I’m fully aware of the risks.
I’m sorry. “
We’ll see if this is clear enough with the new guy. He’s been reasonable in the past (saw him many, many years ago when I was still able to work, and only left when I switched jobs and had different insurance).
DO NOT MOVE TO Northern ILLINOIS if you have a lot of medical issues and expect decent care from “local” “healthcare professionals” unless you get the one that implies “merciful” (all sold out to other companies and they’re no longer advocates for patient well-being, but profits, but I’m hoping the one I’m with now is at least not terrifying). Smaller communities are being paid bonuses to deny care to seniors and the disabled…so they send folks for tests that are cheaper than the fix… and/or hope that folks give up, since that population is limited in transportation options many times.
Well, mission accomplished. I’m done.